Multiple system atrophy (MSA) is the current name for a disorder once known as Shy-Drager syndrome. MSA is a progressive neurodegenerative disorder characterized by symptoms of autonomic nervous system failure, combined with tremor and rigidity, slurred speech, or loss of muscle coordination. Affecting men and women, MSA can progress swiftly or slowly, people generally survive for 9 years after the appearance of symptoms. There is no remission from the disease.
Apr 9, 2012
Went back to the hospital after school today. Sam is in good spirits, she hurts from laying in that bed so much the last few days and says she doesn't feel good. I wouldn't feel good either after all the handling and poking and prodding she has gone through the last few days. The kidney infection looks good, will follow up from home on that one. They did the swallow test and looks pretty good, hopefully thickened liquids are not a permanent thing right now. They can't seem to stable her blood pressure as well as we can at home, so will be good to get her home and back on a routine so she can feel as well as possible at this stage. We have allot of things still to do on the bucket list. Sam has never been to a regular large zoo, we plan on doing that soon before the weather gets too hot. In this stage of her disease, she can not regulate her body temperature herself so we have to be careful to keep her either warm enough or cool enough. So looking forward to the zoo trip! Welcome home late today Miss Thang!! I have all day tomorrow with Sam, I feel a Yahtzee tournament coming on...heck maybe even get into some cards with the card shark she is!
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