Apr 7, 2012

Our Sunshine and Strongest Spirited Woman We Know


Sam

Sam's story begins many years ago, almost 11 years ago when I first moved to Kentucky.  She was the first person that I met in a place that was so foreign to me after being from the deep south.  Sam was the lady across the street, we had kids fairly close in age so were naturally drawn to each other and destined to be fast friends.  We have been through allot in these last ten years, divorces, teenagers, jobs, good times and bad...but nothing prepared us for what has come.  Shy-Dragers, recently renamed as MSA (Multiple System Atrophy), a disease of unknown causes, a disease so rare that only 1 in every 300,000 people in the U.S. have it.  This is a disease that has no cure, a disease that causes most doctors to look at you like you have three heads when they ask what is wrong when we have to take her to the hospital when she goes down.  This disease, is a killer, no cure, no remission, no mercy in it's take down.  I thought that maybe our experiences could help others who are newly diagnosed, or others that can help us, who have already gone through it.  Sit back, grab a cup of coffee and at times a box of tissues as you begin with us a journey of writing therapy for MSA care givers.


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